The Lupus Family Registry and Repository (LFRR) is
- A long-term research project operating in conjunction with the Lupus Genetics Studies
- Sponsored by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS, a branch of the National Institutes of Health)
- The only research resource of multiplex lupus families in the world that scientists in the USA can apply to use in their own lupus research
- A collection of DE-IDENTIFIED materials from families with 2 or more members diagnosed with SLE including:
- Clinical Data
- Serum
- Plasma
- DNA
This information and biologic material is used by 1) Oklahoma Medical Research Foundation Lupus Genetics Studies and 2) other LFRR-approved scientists to
- Identify the genes involved in the development of lupus
- Determine these genes’ role(s) in disease activity
- Study various aspects of the disease (such as autoantibodies)
- Develop better treatment for patients who suffer from this serious illness &
- One day, find a cure or method of disease prevention